A – Z list of resources for traumatic brain injury

[Updated November, 2023]

Are you or a loved one recovering from a traumatic brain injury? You are not alone. According to the CDC, approximately 1.5 million people in the U.S. get a traumatic brain injury each year, and currently, more than 5.3 million people are living with TBI. Although recovery is absolutely possible, it can be long and hard, and survivors and families may need to access services like occupational/physical therapy, speech/language therapy, psychological, and/or social services.

We’ve come up with an A-Z list of organizations and resources that may be helpful for those navigating traumatic brain injury recovery.

American Speech-Language-Hearing Association
Committed to ensuring that all people with speech, language, and hearing disorders, including injuries like TBI, receive services to help them communicate effectively

Bob Woodruff Foundation
Works to ensure that impacted veterans, service members, and their families have access to the highest level of support and resources for TBI.

Brain Injury Association of America
Brain injury research, education and advocacy programs through a national office, a network of state affiliates, support groups, and a helpline

Brainline
National multimedia project offering authoritative information and support to anyone whose life has been affected by brain injury or PTSD

Brain Trauma Foundation
Focuses on conducting innovative clinical research, updating evidence-based guidelines, and working towards improving outcomes for people with TBI

Centers for Disease Control
Prevention and traumatic brain injury data & statistics

Centers for Disease Control – HEADS UP Program
All about concussions: signs & symptoms, prognosis, treatment, prevention, research, education.

CenterWatch
Notice of clinical trials

The Concussion Legacy Foundation
Advocacy, education, policy development, and medical research

The Dana Foundation
The science behind how the brain works; responsible research & education about brain science

Defense and Veterans Brain Injury Center
Serves active duty military, their dependents, and veterans with traumatic brain injury

Facebook-based online TBI support groups
Type in “traumatic brain injury” in Facebook’s search to find the many TBI groups online

Head Injury Association of Northern Nevada (HIANN)
Voice of advocacy for brain injury survivors, their families, and caregivers in Nevada.

LoveYourBrain Foundation
Aims to improve the quality of life for people affected by brain injury and to raise awareness about the importance of brain health

National Alliance of Family Caregivers
Supports families & caregivers of adults with debilitating health conditions. Offers programs & consultation on caregiving issues including free publications & online support, and a national directory of publicly funded support programs

National Disability Rights Network
Provides information and referral services to help those with disabilities find solutions to problems involving discrimination and employment, education, health care and transportation, personal decision making, and Social Security disability benefits

NIH / National Institute of Neurological Disorders & Stroke
Brain injury education, prognosis, treatment, clinical trials, research

National Rehabilitation Information Center
Collects and makes available disability- and rehabilitation-oriented information

Social Security Administration Office of Public Inquiries
Agency of the US government that administers the Social Security program, providing retirement and disability benefits to people in the US

State chapters | Brain Injury Association of America
Find locals chapters of the BIA

United Way
Resource support, financial assistance

Wounded Warrior Project (WWP)
Assists vets who have been severely injured in the conflicts in Iraq, Afghanistan, and other locations around the world

Zero to Hero | Child Brain Injury Trust UK
Raises awareness of brain injury in young adults